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Tuesday, 21 February 2017

Improving care for people with Medically Unexplained Symptoms

Written by Professor Carolyn Chew-Graham@PCSciences | 

As a newly qualified General Practitioner, I struggled to manage people who I thought might have medically unexplained symptoms (MUS). What would I say to the patient? Who could I refer the patient to? What could I do to support the patient, and maybe even try to improve their situation? 

 So, what are medically unexplained symptoms? 

MUS actually accounts for a considerably high proportion of NHS activity, with approximately 10% of total NHS expenditure being spent on services for the working age population in England with medically unexplained symptoms. 

MUS refers to the persistent bodily complaints, whereby adequate examination and investigation does not reveal sufficiently explanatory structural or other specified pathology. MUS are common, with a spectrum of severity, and patients are found in all areas of the healthcare system - Primary Care, the Emergency Department and Specialist Out-patient clinics. Symptoms can often include pain (muscle, headache, pelvic, facial, chest), fatigue, dizziness, shortness of breath, and may also be presented in combination. 

What impact do Medically Unexplained Symptoms have on GPs? 

Extensive literature looks into the impact on clinicians managing MUS, showing that family doctors feel less satisfied caring for patients with persistent MUS rather than patients with psychological problems. GPs have reported that they often find it stressful to work with patients with MUS, going on to describe a sense of 'powerlessness' during the consultation. These negative emotions can then go on to influence their professional judgement. 

During some of my earlier research, conducted with medical students, GPs were interviewed about their experiences of managing patients suffering from MUS. One particularly notable quite illustrated the impact that patients with MUS has on GPs; 

"Some make your stomach churn when they come in...very nervous. They make it very clear they are taking charge; and they do, they take charge, and there is nothing you can do". (GP quoted in the Wileman Paper)

As a GP, what can I do? 

As the Royal College of General Practitioners (RCGP) Clinical Champion for Mental Health (2008-12), I led the development of a number of fact sheets which aim to support GPs in their daily encounters with people with mental health problems. One of these fact sheets focuses on MUS, which makes valuable suggestions to support you, as a GP, in the identification and management of patients suffering with MUS. 

Why do GPs need to use the commissioning guidelines for MUS? 

Whilst GPs need to identify and manage many people with MUS, there are some patients who have more complex problems and need more specialist services. In view of the distress patients with MUS experience, because of the cost of managing MUS to the NHS, and to support clinicians who manage people with MUS, commissioning guidelines were needed to improve services across the NHS for people with MUS. The Joint Commissioning Panel, a joint enterprise between the RCGP and the Royal College of Psychiatrists (RCPsych), has produced a number of guidelines which advise commissioners on the current evidence-base on which to base commissioning decisions, and agree that guidance was needed for MUS. 

How were the guidelines developed? 

An expert reference group was established with myself from RCGP and Dr Simon Heyland from RCPsych acting as co-chairs. The groups membership included people with MUS, Psychiatrists and GPs with expertise in managing people with MUS and/or researching MUS, Psychologists, Nurses and Commissioners. 

The group have spent the last two years working together to agree the final content of these guidelines. 

So, what do these guidelines mean for General Practice? 

These evidence-based guidelines outline what good practice for people suffering with MUS should look like. 

The expert reference group suggest that commissioning which invests in the provision of effective and appropriate MUS services will support the delivery of the Five Year Forward View for Mental Health, and most importantly, improve care for people with MUS. 

Download the MUS Commissioning Guidelines